New study – siblings!

Are you a SIBLING of a child with a developmental disorder? The University of Newcastle, Australia wants to learn more about the experience of having a sibling with 22q11.2 deletion syndrome / VCFS / Di George. We are would like to hear what you think is good or not so good about having a brother or sister with 22q11.2 deletion syndrome / VCFS / Di George. We are looking for people aged 12 years or older who live in the Hunter, Central Coast, or Sydney regions of NSW to take part. You would be asked to take part in a face-to-face interview, lasting approximately one hour. If you are interested in receiving more information about the study please contact: Jane Goodwin on Jane.Goodwin@uon.edu.au or (02) 4349 4678. If you are under 18 years old, we ask that you get a parent to contact us.

Also, click here for more information.

Research on 22q11.2 deletion syndrome (velo-cardio-facial syndrome)

If you are affected with 22q11.2 deletion syndrome, or if you have a family member with the syndrome. Our lab is currently undertaking research that you might be interested in. Have a look on our designated page for 22q related research. On this page you will find more information, in some instances you can find links to online surveys whilst other studies are lab based and requires participation at the University of Newcastle (Central Coast campus or Callaghan campus).  If you would like more information, if you are interested in participating or have a chat, please contact us on findlab@newcastle.edu.au.

New Study: Are you a father of a child with a genetic disorder?

Are you a father of a child with 22q11.2 deletion syndrome, or Williams syndrome, or Tuberous Sclerosis, or Fragile X or another syndrome? The University of Newcastle is interested in your experiences, including if you’ve changed as a result of your child and your coping methods. If you want more information, or would like to complete the questionnaire, you can read more here, or please follow this link to the information statement and questionnaire.

New study: Are you a parent of a person with an Autism Spectrum Disorder?

Are you the parent of a child aged 16-25, who has been diagnosed with Autism Spectrum Disorder (ASD)? If so, we would like your help particularly if you are experiencing behaviours from your child that you perceive are aggressive in nature.This study is interested in both the positive and negative interpretations of parenting a child with a diagnosis of ASD and how you, the parent, make sense of any behaviours that seem aggressive.  We are interested in how these difficulties sometimes associated with Autism Spectrum disorder, impact positively and negatively on parenting and the day-to-day functioning of family life and relationships. To learn more about the study and to contact us, click here.

 

Good News April 2015

Nisha has had her research thesis for a Master in Clinical Psychology accepted Attitudes to sexuality, relationships and parenting: A study about people with Intellectual and Developmental Disabilities – Congratulations! You can read the abstract if you click here and the full thesis should be available on Nova University of Newcastle soon.

Alyce has submitted her MClinPsyc thesis for review – Foster carer stress and satisfaction: An investigation of organisational, psychological and placement factors. The thesis has gone out for review so hopefully we will hear back soon.

We also have had another manuscript accepted for publication. Click on the link to read more about the study.

Campbell, LE., McCabe, KL., Melville, J., Strutt, P., Schall, U. (in press) Social cognition dysfunction in adolescents with 22q11.2 deletion syndrome (velo-cardio-facial syndrome): Relationship with executive functioning and social competence/functioning. Journal of Intellectual Disability Research. Accepted for publication 30-Dec-2014

 

Conference presentations

Jane Goodwin has presented her research on growth and positive psychological outcomes for parents of children with developmental disabilities at a recent national conference in Fremantle, Western Australia and also at an international conference in New York.

Goodwin, J., Strutt, P., Dudding-Byth, T., Campbell, L. E. (2014). “Psychological growth in parents of children with genetic neurodevelopmental conditions: Preliminary results” The Society for the Study of Behavioural Phenotypes (SSBP)’s 17th International Research Symposium and Educational Day. New York City, USA

Goodwin, J., Strutt, P., Dudding-Byth, T., Campbell, L. E. (2014). “Psychological growth in parents of children with genetic neurodevelopmental conditions: Preliminary results” 49th Annual Australasian Society for Intellectual Disability (ASID) Conference. Fremantle, Australia

Read more about Jane’s research here.

Research live

Last week Jaime Wroe presented her research, in which she investigated the thinking patterns around parenting for fathers who have just had a child, at the annual fourth year conference for the School of Psychology at the University of Newcastle. Jaime was awarded  the APS Award for Effort and Achievement and one of the Most Popular Presentation Awards. Read more about Jaime’s research findings here

Erin Forbes also presented her research on emotional availability, parental self-efficacy and psychological wellbeing amongst mothers with young children. Erin received excellent feedback on her presentation. More information about Erin’s research will come shortly.

 

Good News

I would like to congratulate Paul Strutt on the acceptance of his first, first-authored manuscript “High anxiety levels are associated with divergent empathising and systemising tendencies” in the journal Cogent Psychology.

I would also like to congratulate Kristie Austin for successfully having her thesis accepted toward her Masters in Clinical Psychology. Her thesis is titled Depression and anxiety symptoms during the transition to early adulthood for people with intellectual disabilities” and will be available on NOVA shortly.

I would also like to congratulate Sarah Baker on having her thesis successfully accepted for the award of a Master in Clinical Psychology. Her thesis is titledDoes Mindfulness Mediate the Influence of Stress Upon Parenting Relationships in a Foster Care Population: A Pilot Study of the Effectiveness of a Mindfulness Based Parenting Program for Foster Carers“. The thesis is available on Nova.

I would also like to congratulate Nisha Dhani on submitting her thesis toward her Master in Clinical Psychology.

Similarly, congratulations to Jaime Wroe and Erin Forbes for their submission of their theses toward their Hons degrees – best of luck.

Congratulations

I would like to congratulate the new Drs Melanie Stone and Emma Gallagher on the successful completion of their Professional Doctorate degrees in Clinical and Health Psychology. You can read more about their research on our website. Melanie studied stigma among parents with serious mental illness and Emma researched mental health and wellbeing during the transition to adulthood. Both have submitted their manuscripts for publication and we will let you know when they are available.

Also, we have recently had the following manuscript accepted for publication: Goodwin, J., Schoch, K., Shashi, V, Hooper, SR., Morad, O., Zalevsky, M., Gothelf, D and Campbell, LE (in press) A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders. Journal of Intellectual Disability Research.