22q-Connect - The lived experience of teens and young adults with 22q11.2 deletion syndrome (22q11DS) and their families.

Do you have a teenager or young adult child (aged 15-30) with a diagnosis of 22q11.2 Deletion Syndrome, and currently live in Australia?  If so, we need your help! In collaboration with the 22q Foundation Australia and New Zealand Home, Dr Linda Campbell and her research team from the University of Newcastle are investigating the lived experiences of teenagers and young adults with 22q11DS and their families.

​We would like to invite you and your teen/adult child to participate in focus groups to talk about your experiences with a particular focus on what is and what is not working for your family, your hopes and worries for the future, and your needs for support and knowledge. We will hold separate sessions for parents, teenagers and young adults.
 
To find out more about this opportunity to have your voices heard, please click here to read the information statement and to register your interest using the contact form. 

The first scheduled focus groups will be held in Sydney on the 9th of May, 2020 - if you are able to attend that day, please let us know using the same contact form.

If you know anyone who might be interested, please SHARE the link to this webpage to help us reach as many people as possible.

Thank you for your help! ​