Are you the parent of a child, or young person with 22q11.2 deletion syndrome or Autism spectrum disorder?
Linda Swaab is a PhD candidate in the School of Psychology. Linda completed her Bachelor of Psychology (Hons I) at the University of Newcastle in 2015. Her honours project investigating the lived experience of parenting an adult child with ASD who is aggressive was recently published in Advances for Mental Health. In her PhD program, Linda will explore the parental experiences of having a child with 22q11.2 deletion syndrome or Autism Spectrum Disorder. She would like to interview around 40 parents in total and the interviews will take about 1 hr. The interviews can be carried out in person or over the phone.
So, are you the parent of a child aged 11-35, who has been diagnosed with 22q11.2 Deletion Syndrome (22q11DS) or Autism Spectrum Disorder (ASD)? If so, we would like your help.
We are conducting two studies: one aimed at parents of children aged 11-18; and another aimed at parents of children aged 18 – 35. Both of our studies are interested in how you have made sense of parenting a child with a diagnosis of 22q11DS or ASD. We are interested in how behaviours sometimes associated with 22q11DS or ASD impact positively and negatively, from your perspective, on parenting and the day-to-day functioning of family life and relationships.
Please be assured that your information will remain confidential and all data collected will be de-identified.
Hi, I am Dr Linda Campbell. I am an Academic and a Clinical Psychologist. This blog is meant to keep you in the loop about the activities of of our research lab - the FIND Lab.