Newcastle families! Are you a parent of a primary school aged child? Our researchers are leading a study aimed at designing a game-like app for facial emotion recognition to support social communication difficulties.
We are investigating the different ways autistic and non-autistic children might interpret facial expressions after playing a tablet-based game. The study involves various assessments including characteristics associated with Autism Spectrum Disorder, social development, EEG recordings, and we will record eye movements whilst your child looks at photos of children showing different facial expressions (e.g., happy, angry, neutral).
If you are interested in your child participating in this study, please visit https://tinyurl.com/uonautismstudy for more information and to register.
Please share this post if you know someone who may be interested in participating.
This study is being conducted by Prof U. Schall, A/Prof C. Loughland, A/Prof L. Campbell, E/Prof F. Henkens, Mr O. Smith and Ms N. Wall. It has been approved by the University’s Human Research Ethics Committee (Approval No H-2018-0441).
We are trying to learn more about the opportunities and challenges for Australian young people with Autism to get jobs and to keep them. We are really interested in learning more about their experiences; what their aspirations are for work, what they find helpful (or not so helpful), what support they need and what hopes and concerns they have about the future.
Who can participate in the research? If you are between 18-30 years of age; have a diagnosis of an Autism; have completed mainstream schooling; live in Australia and have access to the internet, then you can participate. We would also like to hear from parents/grandparents and other carers of young people with autism.
If you agree to participate, you will be asked to answer questions relating to the research topic through an on-line survey. It will take about 20 minutes to complete the survey. The questions will include ones that ask you questions about work, aspirations and goals as well as challenges and how to overcome them.
To participate click on the link below, read the information statement and then decide if you would like to complete the survey. Make sure you understand the content in the information statement before you consent to participate. If there is anything you do not understand, or you have questions, ask family, friends or other supports that you have or contact us directly.
For young people - click here to access information statement and then click here to access the consent form and also to start the survey
For parents/grandparents and carers - click here to access information statement and then click here to access the consent form and also to start the survey.
Due to COVID-19, we have had to cancel our focus groups planned to be held in Sydney this month. Instead we will organise focus groups using zoom in June.
The first focus group will be for adolescents and young adults with 22q11.2 deletion syndrome (also known as velo-cardio-facial syndrome). This will be an opportunity for young people with the syndrome to share their experiences, thoughts and feelings in a safe place with like-minded people. The group will be faciliated by two students at the University of Newcastle.
The second focus group will be for parents of adolescents and young adults with 22q11.2 deletion syndrome (also known as velo-cardio-facial syndrome). This will be a chance to talk about parents' experiences of raising a child with the syndrome; their hopes, fears and expectations of the future; and their own wellbeing.
If you are interested to participate, please go to 22qConnect, read the information about the study and send an interest form to us. We look forward to hearing from you.
Linda Campbell and the research team.
22q-Connect - The lived experience of teens and young adults with 22q11.2 deletion syndrome (22q11DS) and their families.
Do you have a teenager or young adult child (aged 15-30) with a diagnosis of 22q11.2 Deletion Syndrome, and currently live in Australia? If so, we need your help! In collaboration with the 22q Foundation Australia and New Zealand Home, Dr Linda Campbell and her research team from the University of Newcastle are investigating the lived experiences of teenagers and young adults with 22q11DS and their families.
We would like to invite you and your teen/adult child to participate in focus groups to talk about your experiences with a particular focus on what is and what is not working for your family, your hopes and worries for the future, and your needs for support and knowledge. We will hold separate sessions for parents, teenagers and young adults.
To find out more about this opportunity to have your voices heard, please click here to read the information statement and to register your interest using the contact form.
The first scheduled focus groups will be held in Sydney on the 9th of May, 2020 - if you are able to attend that day, please let us know using the same contact form.
If you know anyone who might be interested, please SHARE the link to this webpage to help us reach as many people as possible.
Thank you for your help!
Parenting a child with special healthcare needs can be difficult. Psychoeducation has been shown to significantly benefit parents. The purpose of this research is to test the feasibility of a web-based interactive e-health support resource. The resource is designed to provide education, knowledge and a way of connecting with other parents to help support parents in their role of parenting a special healthcare needs child.
If you are a parents of child with special health care needs; if your child is aged 0 to 18 years; and you have access to the internet on a computer and or smartphone then you are invited to participate in the study.
You will be asked to complete an pre-access eHealth questionnaire. This questionnaire will provide the researchers with some demographic information as well as some basic information about your current wellbeing. After you have completed the questionnaire, you will be granted a week’s access to the support resource to explore the content. After one week, you will be required to complete another questionnaire that will take approximately 30 minutes . In this questionnaire you will be asked to provide feedback on the the resource as well as provide some basic information about your wellbeing.
If you are interested in finding out more contact the researcher at firstname.lastname@example.org or click here to enter the study.
This study is being conducted by Dr Linda Campbell, Mrs Heidi Emery, and Ms Jaime Wroe from the University of Newcastle.
You might have participated in our BLT-ID study, if so you might be interested in our recent publication.
In this paper we aimed to examine the prevalence and severity of psychological distress of women with asthma in both the prenatal and postnatal periods, and to determine whether asthmatic women with and without mental health problems differ in self-management, medications knowledge, and asthma symptoms. We included data from 120 women with information about prenatal depression data obtained from medical records and through self report at 6 weeks postpartum. We found that twenty percent of our sample reported having a current mental health diagnosis, 14% reported currently receiving mental health care, while 47% reported having received mental health care in the past (and may/may not have received a diagnosis). More specifically, we found that overall women in our sample were more likely to score higher than expected on aggression, avoidant personality and attention deficit/hyperactivity scales. Poorer self-reported postnatal asthma control was strongly correlated with elevated somatic complaints, externalizing problems, antisocial personality problems, and greater withdrawal. However, prenatal spirometry or asthma severity and control were largely not associated with measures of psychopathology. These findings indicate that pregnant women with asthma frequently report issues with psychopathology during the prenatal and postnatal periods, and that the subjective perception of asthma control may be more related to psychopathology than objective asthma measures. However, due to sample bias, these findings are likely to be understated.
If you are interested in reading more about our research information processing information processing, click on Whalen, OM., Campbell, LE., Murphy VE., Lane, AE., gibson, PG., Mattew, J., Collison, A., Mallise, CA., Woolard, A., Karayanidis, F/. (2019) Observational study of mental health in asthmatic women during the prenatal and postnatal periods published in the Journal of Asthma.
Being a new parent can be difficult. Psychoeducation has been shown to significantly benefit parents in the transition to parenthood. The purpose of this research is to investigate the effects of game-based learning using an interactive m-health game. M-health is the use of mobile phones in health-based communication and games. The ‘Choose Your Own Parenting Experience’ is a fun, interactive, game-based experience modelled on the ‘Choose Your Own Adventure’ format designed to be played on your mobile phone. It is designed to equip parents with parenting tips and knowledge to help them on their parenting journey.
This study is being conducted by Dr Linda Campbell, Ms Jaime Wroe and Ms Miranda Cashin from the University of Newcastle.
Who can participate?New parents can participate in the study, if they:
If you are interested in participating in the study or have any questions, please email email@example.com or go to the study website by clicking on this link).
Are you the parent of a child, or young person with 22q11.2 deletion syndrome or Autism spectrum disorder?
Linda Swaab is a PhD candidate in the School of Psychology. Linda completed her Bachelor of Psychology (Hons I) at the University of Newcastle in 2015. Her honours project investigating the lived experience of parenting an adult child with ASD who is aggressive was recently published in Advances for Mental Health. In her PhD program, Linda will explore the parental experiences of having a child with 22q11.2 deletion syndrome or Autism Spectrum Disorder. She would like to interview around 40 parents in total and the interviews will take about 1 hr. The interviews can be carried out in person or over the phone.
So, are you the parent of a child aged 11-35, who has been diagnosed with 22q11.2 Deletion Syndrome (22q11DS) or Autism Spectrum Disorder (ASD)? If so, we would like your help.
We are conducting two studies: one aimed at parents of children aged 11-18; and another aimed at parents of children aged 18 – 35. Both of our studies are interested in how you have made sense of parenting a child with a diagnosis of 22q11DS or ASD. We are interested in how behaviours sometimes associated with 22q11DS or ASD impact positively and negatively, from your perspective, on parenting and the day-to-day functioning of family life and relationships.
Please be assured that your information will remain confidential and all data collected will be de-identified.
Codie Atherton was just awarded a Master of Clinical Psychology degree after completing her thesis titled “Developing a Brief Measure of Coparenting Competence: The Coparenting Competence Scale” under the supervision of Dr Linda Campbell and Dr Chris May (Family Action Centre).
Within the family, one of the most significant relationships that occurs is the coparenting relationship. This is the one that parents share in the raising of children. Recent research by May, St George, Fletcher, Dempsey, and Newman (2017) has developed the concept of coparenting competence, which is the sense of collective parenting efficacy that parents experience in raising children, that is generated in the coparenting relationship and only exists in association with that partnership. The concept of coparenting competence bridges a gap between family systems thinking and efficacy theory wherein research has previously focused on the self-efficacy of one or either parent and not the collective efficacy within the parenting partnership.
In order to learn more about how well parents think they parent together and to enable studies in which coparenting competence is measured - in the current study - we developed a self-adminstered measure of coparenting competence – the Coparenting Competence Scale. The measure was designed by experts in collaboration with parents. The reliability and validity of the measure was tested by asking 302 participants, who were currently living together with their child and had at least one child aged 17 years or younger, to complete the measure online. The current study found support for the reliability and validity of the scale and also found that coparenting competence, assessed by the scale, is distinct from factors previously used to represent coparenting quality in multivariate measures. The current study makes an important contribution to coparenting research with the development of a reliable and valid measure of coparenting competence. The development of the scale adds to the literature by demonstrating that this newly described construct is distinct from factors previously used to represent coparenting quality in multivariate measures. The scale adds to the field of coparenting research as a standalone measure, focused on efficacy, or as another assessable factor in multivariate evaluation of coparenting quality.
Codie’s thesis will be made available on Nova – The University of Newcastle’s digital repository. We are also currently writing up the findings for publication. We will keep you posted.
We are launching a new study exploring the parenting experience of having a child with a neurodevelopmental disorder and severe behavioural challenges such as aggression. We are particularly investigating aggressive behaviours in young people diagnosed with the 22q11.2 deletion syndrome or Autism Spectrum Disorders. We would like to learn more about the types of aggressive behaviours experienced, and also to learn more about how this behaviour affects the experience of parents and the impact these behaviours have on day-to-day family stress and functioning. This is important as there are no published studies exploring this phenomenon in 22q11.2 deletion syndrome and we cannot develop appropriate interventions unless we understand the needs of people with 22q11.2 deletion syndrome and their families.
Firstly, we would like to talk to parents of children aged between 11 and 18 who have a diagnosis of 22q11.2 Deletion Syndrome who are aggressive but we would also like to talk those who have children who are not aggressive. We would then like to talk to parents who have adult children with 22q11.2 deletion syndrome who were (or still are) aggressive in their adolescence.
To start off with the study is for Australian based parents only as we would like to conduct the interviews face-to-face. However, regardless of where you are from, if you have a child with the syndrome who is aggressive - and you are interested in participating in the study - send us a message and we will keep your details so we can contact you for the next phase of the study or organise alternative ways of learning more about your experiences.
Click here to read about the study and to send us a message. If it is not working you can always email us or contact us on Facebook.
Hi, I am Dr Linda Campbell. I am an Academic and a Clinical Psychologist. This blog is meant to keep you in the loop about the activities of of our research lab - the FIND Lab.