New study alert: A STUDY OF ANGER IN FAMILIES WITH AUTISM OR 22Q11.2 DELETION SYNDROME​ (SAFA-22Q)

We are launching a new study exploring the parenting experience of having a child with a neurodevelopmental disorder and severe behavioural challenges such as aggression. We are particularly investigating aggressive behaviours in young people diagnosed with the 22q11.2 deletion syndrome or Autism Spectrum Disorders.  We would like to learn more about the types of aggressive behaviours experienced, and also to learn more about how this behaviour affects the experience of parents and the impact these behaviours have on day-to-day family stress and functioning. This is important as there are no published studies exploring this phenomenon in 22q11.2 deletion syndrome and we cannot develop appropriate interventions unless we understand the needs of people with 22q11.2 deletion syndrome and their families.

Firstly, we would like to talk to parents of children aged between 11 and 18 who have a diagnosis of 22q11.2 Deletion Syndrome who are aggressive but we would also like to talk those who have children who are not aggressive. We would then like to talk to parents who have adult children with 22q11.2 deletion syndrome who were (or still are) aggressive in their adolescence. 

​To start off with the study is for Australian based parents only as we would like to conduct the interviews face-to-face. However, regardless of where you are from, if you have a child with the syndrome who is aggressive - and you are interested in participating in the study - send us a message and we will keep your details so we can contact you for the next phase of the study or organise alternative ways of learning more about your experiences. 

Click here to read about the study and to send us a message. If it is not working you can always email us or contact us on Facebook.