Are you a parent of a child (who is under the age of 12 years old) with 22q11.Deletion syndrome?. Does your child experience communication difficulties where s/he cannot easily use speech to let you know what they want or how they are feeling? Is this communication impairment affecting other areas of their life? For example, does this impact upon their ability to interact with others, or does your child show behaviour problems like aggression or frustration?
If you are a parent of a child with 22q11.2 deletion syndrome and you would like to (a) participate within a research project and/or (b) include your child within a research project that will provide tailored intervention to enhance your child’s communication skills, then please read on.
We are a research group located at the University of Newcastle. We are conducting a research project that has two parts:
Part 1
We are conducting focus groups where parents of children with rare neurodevelopmental disorders can come and talk about their experiences. This will help us to understand the needs of families who have children with rare neurodevelopmental disorders.
Part 2
We are conducting interventions that will try to enhance the communication skills of your child by first assessing your child’s skills, and then providing 1:1 communication intervention for your child with a trained behavioural intervention researcher. The aim of the intervention sessions is to help your child learn how to effectively communicate.
What are we asking you to do?
You can choose to do only Part 1 or both Part 1 and 2. If you would like to participate in Part 1, you will be asked to attend a one-off focus group that will be conducted online. This will begin in February 2021.
If you would like your child to participate in the Part 2 intervention study, you will be asked to bring your child to the University of Newcastle to be assessed and you will then attend weekly 60-min intervention sessions with your child for approximately 12 weeks. This will occur in 2022.
How do you find out more? If you wish to participate and need more information, please email the Chief Investigator, Dr Laura Roche (laura.roche@newcastle.edu.au).
Take care,
Dr. Laura Roche
If you are a parent of a child with 22q11.2 deletion syndrome and you would like to (a) participate within a research project and/or (b) include your child within a research project that will provide tailored intervention to enhance your child’s communication skills, then please read on.
We are a research group located at the University of Newcastle. We are conducting a research project that has two parts:
Part 1
We are conducting focus groups where parents of children with rare neurodevelopmental disorders can come and talk about their experiences. This will help us to understand the needs of families who have children with rare neurodevelopmental disorders.
Part 2
We are conducting interventions that will try to enhance the communication skills of your child by first assessing your child’s skills, and then providing 1:1 communication intervention for your child with a trained behavioural intervention researcher. The aim of the intervention sessions is to help your child learn how to effectively communicate.
What are we asking you to do?
You can choose to do only Part 1 or both Part 1 and 2. If you would like to participate in Part 1, you will be asked to attend a one-off focus group that will be conducted online. This will begin in February 2021.
If you would like your child to participate in the Part 2 intervention study, you will be asked to bring your child to the University of Newcastle to be assessed and you will then attend weekly 60-min intervention sessions with your child for approximately 12 weeks. This will occur in 2022.
How do you find out more? If you wish to participate and need more information, please email the Chief Investigator, Dr Laura Roche (laura.roche@newcastle.edu.au).
Take care,
Dr. Laura Roche