Would you like to be part of ground-breaking research?
Would you like to help us better understand the impact of sleep and physical activity on your child’s behaviour?
Does your child have a diagnosis of developmental disability with a genetic origin?
University of Newcastle researchers are investigating the sleep behaviour and physical activity of people with developmental disabilities. The aim of our study is to report the rates of different type of sleep disturbance among children and adolescents with developmental disabilities of known genetic causes. At this point we are focussing on children aged 5-17 years old.
You could help us investigate this!
We are looking for parents of children with a developmental disability aged 5 to 17 who live with you at home to take part in our online survey. Participation takes around 30-50 minutes depending on your child’s symptoms and behaviours.
Click on the link below to learn more about the study and to complete the questionnaires should you decide to participate. You’ll answer some interview questions about your child and some questions for you.
Note for Non-Verbal Children
If your child is non-verbal, some of the questions in the above survey may be difficult for you to answer. The following link can be used for an alternative survey that has been modified to be easier to answer for non-verbal children. Some questions may still be difficult to answer, but please try and answer to your best ability.
Who to contact?
Phone +61 (0)2 4349 4490
This project has been approved by the University’s Human Research Ethics Committee, Approval No. H-2016-0192. Should you have concerns about your rights as a participant in this research, or you have a complaint about the manner in which the research is conducted, it may be given to the researcher, or, if an independent person is preferred, to the Human Research Ethics Officer, Research Services, NIER Precinct, The University of Newcastle, University Drive, Callaghan NSW 2308, Australia, telephone (02) 4921 6333, email Human-Ethics@newcastle.edu.au.