Do you have a child with a disability?
Parenthood is a unique experience where the joy of expecting the child frequently begins even before the child is born. Typically, parents anticipate the life long journey with their child with thoughts of pleasure, joy and adventure. They expect a healthy and happy life with their child. These expectations can be shattered if the child is diagnosed with a disability. Studies show that parents who have children diagnosed with disabilities are at higher risk of experiencing stress, depression and anxiety. However, many parents adjust well to the changes and challenges of having a child with a disability. Whilst parents might still grieve for the child they thought they were expecting many parents, over time, experience positive psychological growth including for example changing life values, beliefs and attitudes. This psychological growth can lead to resilient family functioning; that is, the ability to effectively manage difficult situations and learn from experiences to become strengthened and more resourceful. However, each family is different and each family has unique challenges that make it more or less difficult to adjust well to having a child with a handicap.
Researchers at the University of Newcastle are interested in studying the experience of people from different cultural backgrounds - all across the world - who have a child diagnosed with developmental disability.
Dr Linda Campbell
Miss Jane Goodwin
Miss Shagufta Alam
This research has been reviewed and approved by the University of Newcastle’s Human Research ethics Committee, reference number, H-2014-0137. Should you have concerns about your rights as a participant in this research, or you have a complaint about the manner in which the research is conducted, it may be given to the researcher, or, if an independent person is preferred, to the Human Research Ethics Officer, Research Office, The Chancellery, The University of Newcastle, University Drive, Callaghan NSW 2308, Australia, telephone (02) 49216333, email Human-Ethics@newcastle.edu.au