You are invited to participate in this study as a father or male caregiver of a child diagnosed with a diagnosed genetic developmental disability (such as 22q11.2 deletion syndrome, Velo-cardio-facial syndrome, DiGeorge syndrome/sequence, Fragile X, Down syndrome, Prader-Willi syndrome, Tuberous Sclerosis, etc.).
This study is about how your child has impacted the lives of fathers and male caregivers. We are interested in how fathers/male caregivers have coped, and how the resources that are available to them have helped or hindered the experience. The aim of this study is to gain a broader understanding of issues facing fathers and male caregivers to children with diagnosed developmental disabilities of a genetic origin. We hope that the results of the study may improve health care processes and models associated with these conditions.
How to complete the survey
The survey will take approximately an hour to complete. There are no correct or wrong answers to any of the questions. If you do not wish to answer a particular question, it is okay not to answer and move on to the next question. Please take your time in thinking about each question before recording your response. If you are interested, click on the image and you will be taken to the online survey. Thank you.