We need to hear from you!
What are your experiences with the healthcare system as a parent of a child with 22q11.2 deletion syndrome
We would like to investigate the health care needs and health care experiences of children with the syndrome and their families. This study will involve completing an online survey about your (as a parent) experiences with healthcare providers, and your perceptions of the quality of care received in relation to your child with 22q11DS. If you agree to participate, you will be asked to complete a survey with questions relating to demographic information about your family as well as questions about your child with 22q11DS, specifically related to the healthcare they have received.
To learn more about the study click here!