AGGRESSION IN CHILDREN WITH 22Q11.2 DELETION SYNDROME OR AUTISM SPECTRUM DISORDER: THE IMPACT ON PARENTS AND FAMILIES
Linda Swaab is a PhD candidate in the School of Psychology. Linda completed her Bachelor of Psychology (Hons I) at the University of Newcastle in 2015. Her honours project investigating the lived experience of parenting an adult child with ASD who is aggressive was recently published in Advances for Mental Health.
In Linda's current program of studies, we will explore the parenting experience of having a child with a neurodevelopmental disorder and severe behavioural challenges such as aggression. We are particularly investigating aggressive behaviours in young people diagnosed with the 22q11.2 deletion syndrome or Autism Spectrum Disorders. We would like to learn more about the types of aggressive behaviours experienced, and also to learn more about how this behaviour affects the experience of parents and the impact these behaviours have on day-to-day family stress and functioning. This is important as there are no published studies exploring this phenomenon in 22q11.2 deletion syndrome and we cannot develop appropriate interventions unless we understand the needs of people with 22q11.2 deletion syndrome and their families.
Firstly, we would like to talk to parents of children aged between 11 and 18 who have a diagnosis of 22q11.2 Deletion Syndrome who are aggressive but also those who are not aggressive. We would then like to talk to parents who have adult children with 22q11.2 deletion syndrome who were (or still are) aggressive in their adolescence.
To start off with the study is for Australian based parents only as we would like to conduct the interviews face-to-face. However, regardless of where you are from, if you have a child with the syndrome who is aggressive, send us a message below and we will keep your details so we can contact you for the next phase of the study or organise an alternative way of learning more about your experiences.
"The truth about rage is that it only dissolves when it is really heard and understood, without reservation." - Carl Rogers.
In Linda's current program of studies, we will explore the parenting experience of having a child with a neurodevelopmental disorder and severe behavioural challenges such as aggression. We are particularly investigating aggressive behaviours in young people diagnosed with the 22q11.2 deletion syndrome or Autism Spectrum Disorders. We would like to learn more about the types of aggressive behaviours experienced, and also to learn more about how this behaviour affects the experience of parents and the impact these behaviours have on day-to-day family stress and functioning. This is important as there are no published studies exploring this phenomenon in 22q11.2 deletion syndrome and we cannot develop appropriate interventions unless we understand the needs of people with 22q11.2 deletion syndrome and their families.
Firstly, we would like to talk to parents of children aged between 11 and 18 who have a diagnosis of 22q11.2 Deletion Syndrome who are aggressive but also those who are not aggressive. We would then like to talk to parents who have adult children with 22q11.2 deletion syndrome who were (or still are) aggressive in their adolescence.
To start off with the study is for Australian based parents only as we would like to conduct the interviews face-to-face. However, regardless of where you are from, if you have a child with the syndrome who is aggressive, send us a message below and we will keep your details so we can contact you for the next phase of the study or organise an alternative way of learning more about your experiences.
"The truth about rage is that it only dissolves when it is really heard and understood, without reservation." - Carl Rogers.
